Comments on: CPAP (or: Snorkeling While I Sleep) http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/ Joey deVilla's Personal Blog Sun, 22 Nov 2009 00:31:30 -0500 http://wordpress.org/?v=2.8.6 hourly 1 By: Kay Schmidt http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-20318 Kay Schmidt Wed, 28 Jan 2009 16:30:44 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-20318 I use a CPAP. Best thing I got from your blog: made me sure I need to get settings adjusted on mine, has been several years since I acquired, and was not asked to go back to lab to get settings ... I think. That sounds so unlikely! In any case, I don't think mine is keeping the airways open. I would so love to feel I'd had a good night's sleep! Doesn't need water input, though would be nice in this dry climate. No hassles with planes, the screeners seem to recognize it easily, so there must be a lot of them/us traveling. The hose is good for turning, has a pivot at the machine end, and at nose mask hose can turn 360' [that's a "degree" by someone who....] I use a CPAP.
Best thing I got from your blog: made me sure I need to get settings adjusted on mine, has been several years since I acquired, and was not asked to go back to lab to get settings … I think. That sounds so unlikely! In any case, I don’t think mine is keeping the airways open. I would so love to feel I’d had a good night’s sleep!
Doesn’t need water input, though would be nice in this dry climate.
No hassles with planes, the screeners seem to recognize it easily, so there must be a lot of them/us traveling.
The hose is good for turning, has a pivot at the machine end, and at nose mask hose can turn 360′ [that's a "degree" by someone who....]

]]> By: Vince http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-19996 Vince Fri, 16 Jan 2009 18:39:16 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-19996 Hey Joey, Been lurking your site for some time, quite informative and entertaining. Yet I randomly came across your blog again while searching for somewhere to DIY fix my CPAP machine. I didn't know you wrote this article... now I'm glad I found it because people ask me for an explanation all the time and this is pretty much it. Unfortunately I've lost my insurance before my machine broke. I and am without my machine and it's a total nightmare. People have no idea the difference in our lives it makes to be able to sleep properly... Anyway thank you for the fantastic descriptive article, now I know where to send people that want to know more :) Hey Joey,

Been lurking your site for some time, quite informative and entertaining. Yet I randomly came across your blog again while searching for somewhere to DIY fix my CPAP machine. I didn’t know you wrote this article… now I’m glad I found it because people ask me for an explanation all the time and this is pretty much it. Unfortunately I’ve lost my insurance before my machine broke. I and am without my machine and it’s a total nightmare. People have no idea the difference in our lives it makes to be able to sleep properly…

Anyway thank you for the fantastic descriptive article, now I know where to send people that want to know more :)

]]> By: MKR http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-15240 MKR Fri, 22 Aug 2008 00:54:33 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-15240 I just got my CPAP, but I haven't found a site yet where people realize you can carry distilled water on a plane in larger quantities than the 3 ounce TSA limit for liquids. On the TSA website,http://www.tsa.gov/311/311-carry-ons.shtm they say that liquids in quantities larger than 3 ounces can be brought as carry-ons if they are for medical purposes. My doctor gave me a generic letter for my CPAP machine just in case and added a line at my request that says I need to carry up to 32 ounces of distilled water with the machine. As a frequent traveler this avoids the trouble of searching for a store that sells distilled water when I travel. I just got my CPAP, but I haven’t found a site yet where people realize you can carry distilled water on a plane in larger quantities than the 3 ounce TSA limit for liquids. On the TSA website,http://www.tsa.gov/311/311-carry-ons.shtm they say that liquids in quantities larger than 3 ounces can be brought as carry-ons if they are for medical purposes. My doctor gave me a generic letter for my CPAP machine just in case and added a line at my request that says I need to carry up to 32 ounces of distilled water with the machine. As a frequent traveler this avoids the trouble of searching for a store that sells distilled water when I travel.

]]> By: » Lost Massachusetts Story #3: “Play the Accordion, Go to Jail!” » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-15161 » Lost Massachusetts Story #3: “Play the Accordion, Go to Jail!” » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog Sat, 16 Aug 2008 14:38:28 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-15161 [...] a good chat about all sorts of topics: pain, sleep lab sessions (his were far more interesting than mine), Mormon philosophy and musical instruments. His recent trips to “N’awlins” have [...] [...] a good chat about all sorts of topics: pain, sleep lab sessions (his were far more interesting than mine), Mormon philosophy and musical instruments. His recent trips to “N’awlins” have [...]

]]> By: sdfasdf http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-15019 sdfasdf Wed, 06 Aug 2008 01:01:18 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-15019 anonymous here. thank you for posting this, helped me and countless others. wish i had this info BEFORE i was diagnosed some years ago anonymous here.

thank you for posting this, helped me and countless others. wish i had this info BEFORE i was diagnosed some years ago

]]> By: » Cincinnati Photo Diary » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-14451 » Cincinnati Photo Diary » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog Thu, 03 Jul 2008 16:37:51 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-14451 [...] had to stop at a grocery store to pick up some distilled water (grumble grumble CPAP grumble). Luckily, we had a GPS, and it led us to [...] [...] had to stop at a grocery store to pick up some distilled water (grumble grumble CPAP grumble). Luckily, we had a GPS, and it led us to [...]

]]> By: King Bee http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-14390 King Bee Tue, 01 Jul 2008 13:31:16 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-14390 I went through this exact same experience, being diagnosed with moderate sleep apnea, (stop breathing 26 times an hour.) and it's great to read that others are going through the same experiences. I have been using mune for about a week now and notice a HUGE difference. Way more energy and memory. I have the nasal pillows and they are uncomfortable. To those of you contemplating the pros and cons, it's worth it. The quality of life increase is amazing. I still can't bring myself to wear the mask while entertaining ladies though. Thanks accordian man! I went through this exact same experience, being diagnosed with moderate sleep apnea, (stop breathing 26 times an hour.) and it’s great to read that others are going through the same experiences. I have been using mune for about a week now and notice a HUGE difference. Way more energy and memory. I have the nasal pillows and they are uncomfortable. To those of you contemplating the pros and cons, it’s worth it. The quality of life increase is amazing. I still can’t bring myself to wear the mask while entertaining ladies though. Thanks accordian man!

]]> By: Joey deVilla http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12988 Joey deVilla Sat, 03 May 2008 19:21:15 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12988 <strong>@Kathy Fry:</strong> Feel free to use any part of this article, photos and text, for your lecture! @Kathy Fry: Feel free to use any part of this article, photos and text, for your lecture!

]]> By: Kathy Fry http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12987 Kathy Fry Sat, 03 May 2008 19:05:01 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12987 Thanks for sharing your experience! I am a Nurse Practitioner Student and am teaching a lecture to my fellow soon-to-be NP's on sleep apnea. Having the perspective of the patient is wonderful and so helpful in building better practitioners! May I use the pictures you've posted of what CPAP mask looks like on and your comments about it in my lecture next week? Thanks again for sharing your experience! Thanks for sharing your experience! I am a Nurse Practitioner Student and am teaching a lecture to my fellow soon-to-be NP’s on sleep apnea. Having the perspective of the patient is wonderful and so helpful in building better practitioners! May I use the pictures you’ve posted of what CPAP mask looks like on and your comments about it in my lecture next week?
Thanks again for sharing your experience!

]]> By: Bruce A. http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12564 Bruce A. Sat, 12 Apr 2008 04:31:24 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12564 I went thru the sleep lab experience last year. Rather to my surprise, since my wife tells me I have the snoring and broken breathing patterns common to sleep apnea, the results showed no signs of apnea. I must admit to a bit of relief at not having to cyborgize myself every night, but it would be even nicer to not have major sleepy-atacks during the day. (The main reason seems to be an inability to get more than about six hours sleep per night. I use Breathe Right strips on my nose nightly, which make six hours sleep feel like seven, but I still have to take Provigil to get thru most days. This is one of the major reasons I'm retiring from the Postal Service in a few months and looking for a new career that will ONLY be 40 hours a week; the hours currently eaten up by overtime and involuntarily-cancelled days off will be better spent trying to get a full eight hours each night.) I went thru the sleep lab experience last year. Rather to my surprise, since my wife tells me I have the snoring and broken breathing patterns common to sleep apnea, the results showed no signs of apnea.

I must admit to a bit of relief at not having to cyborgize myself every night, but it would be even nicer to not have major sleepy-atacks during the day. (The main reason seems to be an inability to get more than about six hours sleep per night. I use Breathe Right strips on my nose nightly, which make six hours sleep feel like seven, but I still have to take Provigil to get thru most days. This is one of the major reasons I’m retiring from the Postal Service in a few months and looking for a new career that will ONLY be 40 hours a week; the hours currently eaten up by overtime and involuntarily-cancelled days off will be better spent trying to get a full eight hours each night.)

]]> By: » CPAP Cost Breakdown » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12544 » CPAP Cost Breakdown » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog Fri, 11 Apr 2008 19:38:39 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12544 [...] received a lot of email resulting from my CPAP article. Many emails asked me about the costs of a CPAP machine. I’m only too happy to provide a [...] [...] received a lot of email resulting from my CPAP article. Many emails asked me about the costs of a CPAP machine. I’m only too happy to provide a [...]

]]> By: Whistleblower http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12540 Whistleblower Fri, 11 Apr 2008 17:56:01 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12540 Holy moley batman! Still, how awesome is Health Canada! And now you sleep and have a machine that everyone secretly envies. Well done. Holy moley batman! Still, how awesome is Health Canada! And now you sleep and have a machine that everyone secretly envies. Well done.

]]> By: The Redhead Wore Crimson » Blog Archive » A Question and Some Comments http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12515 The Redhead Wore Crimson » Blog Archive » A Question and Some Comments Thu, 10 Apr 2008 14:59:58 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12515 [...] wrote a big post yesterday about his CPAP.  I made a short comment on the post but of course I have more to say.  When do I [...] [...] wrote a big post yesterday about his CPAP.  I made a short comment on the post but of course I have more to say.  When do I [...]

]]> By: Eilonwynn http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12510 Eilonwynn Thu, 10 Apr 2008 13:44:32 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12510 I went through the whole shebang last octoberish - I actually went with the one in the picture, because I wear glasses. It doesn't bother me. A couple of things that my doctor told me: Expect to need a pressure adjustment after a few months. Bodies are stupid, and apparently they can get used to the amount of pressure, and need it shifted upwards. Two: The grey hair? Caused by sleep apnea. Seriously. I'm in my mid twenties and going very badly grey because of it (my numbers are also six times yours.) Three: Ohip doesn't really cover half the price. They cover about 75% of a standard base machine price, with absolutely no extras. Mine was a bit above the base, because I wanted the nasal pillow and not a full face mask. Four: Wendy, just think of it this way: now you get to fully develop all your best darth vader fantasies. I went through the whole shebang last octoberish – I actually went with the one in the picture, because I wear glasses. It doesn’t bother me.

A couple of things that my doctor told me: Expect to need a pressure adjustment after a few months. Bodies are stupid, and apparently they can get used to the amount of pressure, and need it shifted upwards.

Two: The grey hair? Caused by sleep apnea. Seriously. I’m in my mid twenties and going very badly grey because of it (my numbers are also six times yours.)

Three: Ohip doesn’t really cover half the price. They cover about 75% of a standard base machine price, with absolutely no extras. Mine was a bit above the base, because I wanted the nasal pillow and not a full face mask.

Four: Wendy, just think of it this way: now you get to fully develop all your best darth vader fantasies.

]]> By: Tris Hussey http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12509 Tris Hussey Thu, 10 Apr 2008 13:29:13 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12509 Good for you Joey. I often wonder if my sleep problems are caused by that as well. Oddly enough I started sleeping with earplugs and I'm sleeping better. Hmm. Good for you Joey. I often wonder if my sleep problems are caused by that as well. Oddly enough I started sleeping with earplugs and I’m sleeping better. Hmm.

]]> By: Carson T. Foster http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12503 Carson T. Foster Thu, 10 Apr 2008 07:21:44 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12503 Hey Joey. My father went through this and it made a huge difference in his life. There are some areas I'd like to talk about next time I see you, though. ... to do with sleep clinic knuckleheads. Carson Hey Joey. My father went through this and it made a huge difference in his life.
There are some areas I’d like to talk about next time I see you, though.
… to do with sleep clinic knuckleheads.
Carson

]]> By: Jeremy http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12501 Jeremy Thu, 10 Apr 2008 04:17:36 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12501 does it come with matching flippers? does it come with matching flippers?

]]> By: Gabriel Mansour http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12497 Gabriel Mansour Thu, 10 Apr 2008 02:24:46 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12497 Didn't Homer have one of these <a href="http://en.wikipedia.org/wiki/Half-Decent_Proposal" title="'Half-Decent Proposal'" rel="nofollow">at one time</a>? :) Also, I noticed that the <a href="http://cpapsociety.com/?cat=4" rel="nofollow">CPAP Society</a> and <a href="http://twitter.com/" rel="nofollow">Twitter</a> have something in common. I think this might be a little more than a coincidence, no? Didn’t Homer have one of these at one time? :)

Also, I noticed that the CPAP Society and Twitter have something in common. I think this might be a little more than a coincidence, no?

]]> By: » CPAP Question: How Far Does the Hose Reach? » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12494 » CPAP Question: How Far Does the Hose Reach? » The Adventures of Accordion Guy in the 21st Century : Joey deVilla’s Personal Blog Thu, 10 Apr 2008 02:02:03 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12494 [...] « CPAP (or: Snorkeling While I Sleep) [...] [...] « CPAP (or: Snorkeling While I Sleep) [...]

]]> By: Donavan http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/comment-page-1/#comment-12491 Donavan Thu, 10 Apr 2008 01:06:36 +0000 http://www.joeydevilla.com/2008/04/09/cpap-or-snorkeling-while-i-sleep/#comment-12491 Glad you got treatment I put mine off for years. I could kick myself now for waiting so long. I started with a mask similar to yours and settled on the Resmed Mirage II in the second picture. The difference has been AMAZING to say the least. Glad you got treatment I put mine off for years. I could kick myself now for waiting so long. I started with a mask similar to yours and settled on the Resmed Mirage II in the second picture. The difference has been AMAZING to say the least.

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